Indi Gregory, the eight-month-old child on the centre of a authorized battle between her mother and father and the NHS, has died after her life support was withdrawn, her household mentioned.
Indi was critically unwell with an incurable genetic mitochondrial situation and workers on the Queen’s Medical Centre (QMC) in Nottingham mentioned they may do no extra for her.
She was transferred from the hospital to a hospice on Saturday after the Courtroom of Enchantment dismissed a authorized problem on Friday from her mother and father Dean Gregory and Claire Staniforth, who needed to take their daughter house earlier than her life help was withdrawn.
In an announcement launched by way of Christian Concern, who supported the mother and father of their authorized efforts, Mr Gregory mentioned his daughter’s life ended at 1.45am on Monday in her mom’s arms.
He mentioned: “Claire and I are indignant, heartbroken and ashamed. The NHS and the Courts not solely took away her likelihood to dwell an extended life, however in addition they took away Indi’s dignity to cross away within the household house the place she belonged.
“They did achieve taking Indi’s physique and dignity, however they will by no means take her soul. They tried to eliminate Indi with out anyone realizing, however we made positive she could be remembered ceaselessly. I knew she was particular from the day she was born.
“Claire held her for her ultimate breaths.”
Final week, legal professionals representing Mr Gregory and Ms Staniforth requested a Excessive Courtroom decide to permit Indi to be transferred to a hospital in Rome for emergency specialist therapy.
However Mr Justice Peel denied the request in a ruling on Thursday. Permitting medics to withdraw life help, the decide mentioned the medical proof was “unanimous and clear”.
Medical doctors had argued any additional therapy was futile and would extend Indi’s struggling.
Indi, who was born on Feb 24, was receiving round the clock therapy for her situation, which prevents cells within the physique producing vitality.
